Tag Archive for 'Cancer'

Life with cancer… 4+ years later. (Please Pass This On)

Today is a day about truth.  Today is also a day about taking action.  Today is the day that, once again… the pain, hurt, fury and frustration has boiled to the surface… and I am fired up enough to write another passage about what it’s like to be a survivor of cancer.

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These messages were painted on the roads of the Tour de France before the peleton pedaled through.

Just as Lance Armstrong was pedaling through France this past summer, I was spending two wonderful weeks with my big sister Lea.  Diagnosed with leukemia on January 10, 2005, Lea has survived a barrage of assaults on her body, mind and spirit.  Not surprisingly, for those that know and love her… she is a unyielding fighter… who can reach deep into her soul and produce courage and focus that is truly incredible.  Many would say that Lea has beaten cancer, and by all medically relevant standards she has… but there’s so much more to her story, more that is easily ignored, forgotten or avoided: It’s the aftermath.

There’s a lot of hardship in this world… and my guess is that folks who have endured severe tests of the spirit, know a thing or two about surviving.  But like the person who climbs out the wreckage after a tornado destroys their home, or the soldier who spends months in physical therapy learning to walk again… there are certain challenges that take years and even decades to rebuild from.  Leukemia has been that for our family.  Lea beat hell out of her cancer, but it’s impacts are still felt everyday.

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You did it Lea… you really did!!

We first became involved with Doug Ulman and the LIVESTRONG movement in the moments after Lea’s diagnosis.  Through the tears and the nausea of the news, LIVESTRONG was the first organization that really tapped into our fighting spirit.  There was an unapologetic belief that there was strength in unity, and that hope was as powerful as any cancer drug would ever be.  We’re forever grateful and as a result we want to make sure that everyone out there understands how important it is that we unite together against the epidemic of cancer.

So today happens to be LIVESTRONG Day and there are ways YOU can help.  We are donating 10% of our annual profits to Livestrong and like minded charities… so our request isn’t for moola… it’s for involvement.

Here’s how:

1.)  Register your bone marrow:  Swab your cheek with a Q-tip at home for FREE as part of becoming a bone marrow donor.  If you’ve been meaning to do this, do it today.  It’s easy and you’re saving someone’s life!!!  PLEASE do this.  If you already have done it… THANK YOU!  Please write in and tell us what made you do it!

VIDEO: How to register / get tested

Here’s how to sign up for a free test kit (donations accepted but not required):

http://www.dkmsamericas.org/category/marrow-donors/become-donor

You might never be a match, but if you are… wow, you’re in the position to save someone’s life!!  You’re not donating a kidney or a lung now… so get that whole gory, life altering surgery concept out of your head right off the bat.  The act of bone marrow donation can take on one of two different forms, but 70% of all donations are taken in a procedure very similar to the simple act of donating blood.  The cold hard truth though is that every year 35,000 people need a donor and only 3800 will find one.  Bottom line: we need more people involved and you could be that one!

A great video that explains what the actual donation process is here:

2.)  Get healthy and get involved.  Go for a walk today, ride your bike, play with your kids, smoke one less cigarette, eat a salad… whatever.  Do something healthy for you and your family.

3.)  Livestrong: it’s not all about Lance… it’s about uniting against cancer.  Get involved through this link here. While you’re at LIVESTRONG, go buy some of their sweet gear, and wear it with pride knowing that you’re helping a great organization with your cash while raising awareness about cancer.  If you want to understand what LIVESTRONG is to survivors like us, here’s their manifesto:

THE MANIFESTO OF THE LANCE ARMSTRONG FOUNDATION

We believe in life.
Your life.
We believe in living every minute of it with every ounce of your being.
And that you must not let cancer take control of it.
We believe in energy: channeled and fierce.
We believe in focus: getting smart and living strong.
Unity is strength. Knowledge is power. Attitude is everything.
This is the Lance Armstrong Foundation.

We kick in the moment you’re diagnosed.
We help you accept the tears. Acknowledge the rage.
We believe in your right to live without pain.
We believe in information. Not pity.
And in straight, open talk about cancer.
With husbands, wives and partners. With kids, friends and neighbors. And the people you live with, work with, cry and laugh with.
This is no time to pull punches.
You’re in the fight of your life.

We’re about the hard stuff.
Like finding the nerve to ask for a second opinion.
And a third, or a fourth, if that’s what it takes.
We’re about getting smart about clinical trials.
And if it comes to it, being in control of how your life ends.
It’s your life. You will have it your way.

We’re about the practical stuff.
Planning for surviving. Banking your sperm. Preserving your fertility. Organizing your finances. Dealing with hospitals, specialists, insurance companies and employers.
It’s knowing your rights.
It’s your life.
Take no prisoners.

We’re about the fight.
We’re your champion on Capitol Hill. Your advocate with the healthcare system. Your sponsor in the research labs.
And we know the fight never ends.
Cancer may leave your body, but it never leaves your life.
This is the Lance Armstrong Foundation.
Founded and inspired by one of the toughest cancer survivors on the planet.

LIVESTRONG

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Ok… that’s it!  Thanks for hearing us, thanks for being involved, thanks to Tammy for donating her bone marrow to my sister… and most of all, thanks to Lea Morrison who inspires me everyday with her attitude, action and love.

To Lea: I couldn’t be more proud to be your little brother, and I want you to know that I understand how hard you work EVERY day to stay healthy and positive.  You have earned your title of Survivor the hard way.  I hope you will take a moment today, on LIVESTRONG Day to celebrate how far you have come!!

Highlight of the year: The Gift of Life… (Please Pass This On)

We have had a GREAT winter and spring thus far, supporting clients all over the globe, shooting in some pretty incredible locations… but business and life have been busier than ever.  As I look back on all the achievements, opportunities and folks we’ve worked with… I realize that this is the very first year in the past four years that I wasn’t  absolutely consumed with thoughts of my sister’s cancer, her bone marrow transplant and the messy logistics that goes along with all of that.

My sister’s improved health has been the result of tenacious determination, an indefatigable spirit, a talented team of caregivers… and most importantly, the selfless, incredible gift from her anonymous bone marrow donor.

Recently, I had the amazing opportunity to actually meet my sister’s bone marrow donor.  Her donor’s name is Tammy, she’s about my sister’s age, and we had dinner together along with her fabulous husband Chris just before I flew out for another photo shoot.  Meeting Tammy and Chris was one of the most surreal moments of my life.  I was giddy with excitement, bubbling over with emotion (READ: tears)… and challenged to fully express my sense of gratitude for her sacrifice, and for the lifetime of pain she had spared Lea and everyone in our family.  As much as I wanted to know all about her and Chris, she wanted to know all about Lea and the process from the patient’s side.  We talked for hours sharing our experiences.

Brian Wedge Bone Marrow Blog

With The Heroes: Chris and Tammy on the left (and me)

I spent most of the night thanking them both for their efforts, for their selfless gifts, and for THEIR determination to see this process through.  Tammy and Chris had a “once in a lifetime” opportunity to help someone that they didn’t even know… and they took it.

Some call it Providence, some call it karma… others call it dumb luck.  Whatever it was, we were very fortunate to find a donor at all… never mind someone like Tammy who was a perfect match, and who was so willing to give so much.

As we left the restaurant that night, I told (yelled at) every person we saw that “This woman saved my sister’s life.”  I know it embarrassed Tammy, but it is the absolute truth… and it’s something not only to celebrate, but also aspire to.  What if we ALL stepped up to the plate for someone we didn’t know?  What if we were all willing to give of ourselves so that someone else may live?  If you had the opportunity, would you?

VIDEO: How to register / get tested

Getting tested for bone marrow is easy… it literally just involves swabbing your cheek with a Q-Tip and it’s FREE (optional donation to cover costs accepted but not required).  Here’s how to sign up:

http://www.dkmsamericas.org/category/marrow-donors/become-donor

You might never be a match, but if you are… wow, you’re in the position to save someone’s life!!  You’re not donating a kidney or a lung now… so get that whole gory, life altering concept out of your head right off the bat.  The act of bone marrow donation can take on one of two different forms, but 70% of all donations are taken in a procedure very similar to the simple act of donating blood.  The cold hard truth though is that every year 35,000 people need a donor and only 3800 will find one.  Bottom line: we need more people involved and you could be that one!

A great video that explains what the actual donation process is here:

Our lives are forever changed by Tammy’s gift.  Her generosity has inspired so many… and I hope it inspires YOU and those around you.  Thank you Tammy!!!

If you would like to thank Tammy for her donation in the comments section below, have at it!

If she inspires you to register, or get friends/family registered let us know… and by all means pass this blog post on!

The Photographer and The Common Good

Brian Wedge Photography

“Be the change you want to see in this world.”  -Gandhi

Gandhi said and did many wonderful things, but those words specifically have inspired with me for years and years since I first read them.  Though we’re far from perfect, my wife Malia and I have tried hard to build an environmentally and socially responsible company.  We often chat with clients who are surprised to hear the lengths that we’ve gone to stick to our core values… and to support those non profits who are promoting positive change in this world.

At the repeated request of more than a few of our clients and our colleagues, we thought we would share a bit about what we’ve been up to… why we’re actively supporting certain organizations… maybe even inspire a few folks to join us… and to remind everyone out there who is doing good in cyberland that you’re not alone, and you don’t have to be perfect to make a difference.  These “tough times” are hitting charitable organizations harder than any other sector of the economy, so they need our help!

Brian Wedge Photography

Here’s our most recent attempts to be that change we wish to see… with our time, with our money, our expertise and with our actions.

Last year we donated over 10% of our profits to charities and non-profits.  Some call that tithing, others call it corporate responsibility, we just call it contributing to the common good.  We have committed in writing through a group called 1% For The Planet to make that same level of contribution every year.  They review our end of year tax documents, and they independently hold us accountable to our agreement.  The third party system of authentication is very important to us… we want folks to know that we’re committed to improving the world we live in, and not just exploiting a cause because it’s fashionable.

We operate our business out of a sustainably built (LEED Design) boathouse studio that’s a passive solar, super-insulated, reclaimed/recycled material based space, that is a joy to work out of and to meet clients at.  We’re very proud of the end result because of it’s low impact on the environment, it’s beauty and the fact that we built it ourselves with the help of our friend Bevan Harris.

We also donate over two weeks of professional photography services to non-profits who would otherwise be unable to afford such a  high level of creative investment.  It’s been an absolute joy to get to know these local, national and international non profits… and to “tell their story” in ways that help them further their mission.

Brian Wedge Photography, Brian Wedge Photography, Brian Wedge Photography

Everyone always wants to know… where specifically did all that money go??  Who is benefitting and why?  Here’s the short answer for the past 12 months:

The Lance Armstrong Foundation:  Most folks know by now that our family has endured the hell that is cancer for the past three years as my sister, Lea, was diagnosed with leukemia.  Our support has ZERO to do with Lance Armstrong as an individual or as a celebrity (though I ran the Boston Marathon on his team, and he did seem like a nice guy)… it has EVERYTHING to do with the aggressive actions of the non profit to motivate/support research for survivors in their time of need.  We think cancer sucks, it infuriates us that it devastates so many people’s lives and we believe that there is power if we unite to destroy it.  We believe that cancer should be eradicated across the board… so we don’t fund individual types of cancer research nor age groups of cancer… though we have a special hatred reserved for breast cancer which took my aunt’s life, and leukemia which my sister battled with a bone marrow transplant and knocked back into whatever hole it emerged from.  My anger towards cancer is another reminder that I’m not Gandhi, but when channelled that frustration has been very helpful as we raised over $11,000 in 2008 alone.

The Surfrider Foundation:  I grew up near once-filthy Boston Harbor… so I’ll first say that many of our coastlines are cleaner now than they’ve been in a long time.  But we live on the edge of the ocean, our studio is on the ocean, we play and harvest food from the ocean… and the Surfrider Foundation is a non-profit environmental organization dedicated to the protection and enjoyment of the world’s oceans, waves and beaches for all people, through conservation, activism, research and education.

Brian Wedge Photography

The View From Our Boathouse Studio…

Cancer Community Center of Maine:  This is a great organization that was available to us when we dealt with cancer.  The Cancer Community Center provides a warm and friendly place where adults living with cancer, their families and friends can come together in a comfortable, caring setting to build social and emotional support as a complement to their regular medical care. 

The Jane Goodall Institute:  I grew up in a household of strong women who broke through social barriers and did things that they “weren’t supposed to do.” For example, my sister and wife were ridiculed as the first girls that played boys baseball in their respective hometowns, my mom was a weirdo in the 1960’s who consistently did things that were typically reserved only for men.  They did things before their time, and so did Jane Goodall.  Besides inspiring girls to live their dreams, the Jane Goodall Institute “advances the power of individuals to take informed and compassionate action to improve the environment for all living things”… how can you argue with a mission statement like that?

The United Way:  The United Way funds so many different community based organizations it’s amazing.  My direct connection: I learned to sail at a Boy’s and Girl’s Club in Boston.  The experience changed my life forever.

The Leave No Trace Center For Outdoor Ethics:  We’ve been around the world to some incredibly special places, and can’t help but notice that we are sometimes loving our environment to death.  Low impact wilderness travel is an essential skill that is often forgotten or ignored as we tromp through the our favorite backcountry spot.  The Leave No Trace Center for Outdoor Ethics is an educational, nonprofit organization dedicated to the responsible enjoyment and active stewardship of the outdoors by all people, worldwide.

Brian Wedge Photography

Red Rocks, Nevada

The Access Fund:  The Access Fund is the national advocacy organization that keeps U.S. climbing areas open and conserves the climbing environment.  They’ve done wonders for climbers over many years in spite of a relatively tiny budget and staff.  

Pro Peninsula: Pro Peninsula strengthens individual and community efforts to protect the natural environment throughout the Baja California, Mexico Peninsula.  One of the world’s last truly wild places, the Baja California peninsula is a unique yet threatened environment. Strong environmental organizations are needed to promote social awareness and participation in order to counter the relentless threats to the region’s environment, while at the same time promoting sustainable development alternatives.

The Kokua Hawai’i Foundation: Kokua in Hawaiian means “help,” and the Kokua Foundation supports environmental education in the schools and communities of Hawai’i.  My wife, Malia, was born and raised on Oahu… and it’s still our home away from home.  The Kokua foundation’s mission is to provide students with experiences that will enhance their appreciation for and understanding of their environment so they will be lifelong stewards of the earth.

Brian Wedge Photography

“Our hometown beach”  Lanikai, Hawai’i.

Though we continue to assist other organizations like the Nature Conservancy, National Public Radio, The Portland Museum of Art and The American Lung Association in smaller ways, the organizations above have been the focus of our major efforts in the past year.  Thanks to everyone who has harassed us for so long to share the extent of our involvement… we hope it helps, and we appreciate the support of numerous clients who encourage our efforts.

We’re all in this together, we’ve been inspired by other 1% For The Planet Companies who have made certifiable commitments.  Our hope is that others out there might read this and be inspired to act in a way that contributes to the greater good.  The downturn in our economy means that our efforts are even more important, and we have a unique opportunity to step up and support the causes we believe in.

Boston Marathon: Done!!

WE DID IT!!!! THANK YOU SO MUCH FOR YOUR SUPPORT!!

Listen to the 30 second NPR Interview of one of our supporters (Jim Kahn) talking about Lea.

Nothing sums up the experience better then this.  It’s worth it!!!!

The race was wonderful… and difficult to say the least.  Despite having the flu all last week, I went into the race feeling positive and excited.  We met with Lance Armstrong and Joan Benoit Samulson on Saturday, and it added to the inspiration.

The crowds were fantastic and the weather couldn’t have been nicer.  

The first half of the marathon went really well.  I had promised to go slow, to savor every aspect of the fans, the runners and to think of all of my wonderful supporters!  

I started to have some of that chest congestion like I had last week around mile 14, and by mile 20 (Heartbreak Hill) the “wheels were coming off the bus.”  Breathing was a bit tough, but I saw my family and friends on the hill… and it made a HUGE difference (thank you for being there!).

Some cramped legs and a little “Kona Shuffle” brought me in the rest of the way.  I finished well over an hour beyond my projected time, but I’m really not disappointed at all.  

This journey started in the depths of winter with my sister enduring rounds of Cytoxin, my mother watching her baby girl lose her hair, my brother-in-law having to leave his wife overnight in the hospital and Christine, my constant companion seeing the impact of this hell on me.

This entire marathon was a journey of hope, of family, of friendship and of faith.  The fact that I found myself suddenly a little under the weather reminded me of the millions out there touched by cancer who are fighting to LiveSTRONG.  I was running for THOSE people who couldn’t have this opportunity and I was running most of all for Lea… who in classic grace and athleticism ran this course in just over three hours a few years ago.

Sometimes the greatest joy comes from the challenges that are most difficult… and this race was no different.  Of all the races I’ve competed in, this is the most significant for me.

I know you’ve been with me every step of the way.  THANK YOU.  I know Lea’s struggle and the battle against cancer has touched you in a unique and very real way.  I’ve truly felt the support.

There’s very little that sums up our cumulative feelings better then this 30 second interview I heard this morning on NPR.  One of our friends who was out on the course was asked “why he was out there.”  Grab some tissues… because it’s the same reason you all have been with us:

CLICK TO LISTEN TO THE 30 second NPR INTERVIEW of one of our supporters (it’s worth it)

Pulitzer Prize, Cancer and our community…

The Pulitzer Prize was just awarded to our friend and fellow photojournalist Preston Gannaway (Concord Monitor). Congratulations Preston! (link below)

Her work is inspiring, and as many of you know whose lives have been touched by cancer… all too real and painful for many of us. It’s a real reminder that we’re all Survivors. Not just those diagnosed with the disease, but also the siblings, the parents, he friends and the children.

Too many long days and even longer nights that I can certainly relate to.

It’s tough to watch, but respectful, honest and REAL.  Everything we love (even with the heartache).

-B.